I race in honor of my dad, Tom Perman, who is in the later stages of ALS. He was an avid cyclist and I have many fond memories cycling the countryside with my father as a young cyclist. This love has lead me to my current passion of racing triathlon. To me, Blazeman Warrior duty is the symbolic act of racing for all others who are inflicted with not only ALS but for all diseases that have no cure. I know these well for my mother passed away from Alzheimer's Disease at a young age of 62, my oldest daughter has battled Type 1 diabetes since age 5, and my husband and middle and youngest daughter have celiac disease...all diseases that have no cure. My family inspires me and are the true warriors who show bravery every day. I race for the love of my family and humbly wear the Blazeman colors for all others who must battle. I am proud to be a member of Team Blazeman.
"I race in honor of my father, Thomas Perman, who was diagnosed with ALS (Lou Gehrig' Disease), for Jon Blais, "the-blazeman" an (alswarriorpoet-spirit), all other "poets, pALS who battle this disease. I am committed to forever be a part of Team Blazeman and be a "Blazeman Warrior." As an early cyclist years ago, I have many fond memories pedaling the countryside with my father, an avid cyclist. His love of cycling had influenced me to pursue this passion that eventually lead me to racing triathlon. As of now, ALS has no cure. Research is in it's infancy as well as any advances against the disease. Please help this cause. Thanks so much, Sincerely, Amy."
For all at the BF-ALS...thank you for helping us..."fight the good fight", Jon "Blazeman" Blais......Yes Believe..."Pick a stronger word than Hope...Cure"-blazeman. "FREEDOM"!!!! thank you..."remember, always follow your bliss"...(your friend)..."the -blazeman", (alswarriorpoet-spirit). For the Blazeman Foundation for ALS...G-D bless and... thank you!!! As Jon so often said..."an act of kindness is never forgotten", ......Thank you ...it's so very appreciated..."racing for a cure"...raising awareness for a meaningful treatment... and a cure...“So Others May Live®”!!!... "Mo...chuisle"...always in our hearts...ALS Poets and ALS poet-spirits...FREEDOM!!!!!!!!!!!!!!! Thank you, Jon, "the-blazeman.
In 2007 IMWC...NBC... WTC tribute, where they said goodbye to the -blazeman and expressed the hope that maybe someday there would be a cure and that Jon's Foundation would be involved...(https://www.youtube.com/watch?v=qPeEjaTHF1E&feature=youtu.be&t=55m56s) to this, we are dedicated...and so we "warrior on"...through Team Blazeman...and now with you...and we thank you!!!
FROM AMY... I race for them and others, I may not win or podium any race, but my platform is much larger than doing so. Thanks for you support. Much love. Amy Javens
Thank you so much. So much appreciated. I visited my Dad today. He remains at home w/ 24 hr care. His ALS has been a slow progressing case. He has had a recent spiral downhill these last couple weeks. We have had hospice in with him since spring. In spring, we were told 2 weeks to 2 months time, but he is still with us. His will is to be with us some more. His ALS has progressed to the point where his body is in spasms and his legs are contracted w/ his toes pointing down pretty much 24/7. It is very painful for him , so he gets pain meds appropriately to help relax him a bit. He has not been able to speak or move for quiet some time. He is considered in the final stages, but is still able to swallow. He recently has become unable to communicate w/ his speaking device and now blinks or squeezes our hands to let us know what he wants.
Shortly after my mom was diagnosed w/ alzhemeirs and he w/ ALS, he told me, "and to think I saved my whole life for my golden years, and now I no longer have them." These words hit me hard. I recently turned PRO, these words were a big influence for me to do so. I don't race for me, I race for them and others, I may not win or podium any race, but my platform is much larger than doing so. Thanks for you support. Much love.
CALLING ALL ALS BLAZEMAN WARRIORS TO THE BATTLEFIELD
I NEED YOUR HELP
"April Hartsook: ALS Warrior"
These days, it's not unusual for an athlete to dedicate a special game to someone who has passed away. For years, triathletes April Hartsook and her pal Karen Kelly have competed in Ironman competitions around the world, raising awareness and funding for research to find a cure in the WAR ON ALS aka Lou Gehrig’s Disease. In honor of their friends Jon Blais & Rosemary Craig, and in memory of Karen's Mother, all who died of ALS. But this year, it's different, April will be racing not only without Karen, now she's racing FOR Karen. Through some sick twist of fate, Karen was herself diagnosed with ALS in 2012, and is in the fight of life.
Here in America, nearly 6,000 people are diagnosed with ALS each year, and over 30,000 have the disease at any given time. Karen Kelly's Mom was one of those victims, and now, so is Karen.
"Karen is a true Ironman. For years she has tirelessly given to the ALS BLazeman Foundation and the ALS community in hopes of raising awareness. She's been strong for others, and now we want to be strong for her", said Hartsook, who is a professional fitness trainer in North Carolina when she's not traveling the globe to compete in Ironman competitions.
An Ironman competition requires participants to compete in three events within a 17 hour time limit They consist of a 2.4 mile swim, a 112 mile bike ride, and a 26.2 mile run. Over 100,000 athletes enter some 37 Ironman races every year, hoping to snag one of the 2,000 slots in the annual Ironman World Championships, which are held in Kona, Hawaii. Anyone who finishes first in his age group in any race during the season, automatically qualifies for a slot in the Kona finals, held in October.
April has been training everyday of her life for many years and is fully prepared for a qualifying race to gain entry, however she has entered the 2013 IRONMAN KONA INSPIRED CONTEST by submitting a video describing her plight to get to Kona to fight for Karen, not because she wants something for FREE~ but because the Ironman mantra “Anything is Possible” is what we need in finding a CURE for ALS. April will be asking people to log onto the website www.konainspired.com, watch her video entitled "KONA FOR KAREN AND ALS", and with the simple click of the mouse, cast a VOTE to help send them to KONA. Entries with the most votes will be granted a complimentary an entry in the Race. "This isn't about me, this is about Karen and the WAR ON ALS, I need to get to KONA and having the world help me gives them a chance to be a part of something "So others may live", said Hartsook.
For April & Karen, the clock is ticking, this disease is fast and furious and Karen is fighting for her life.
The World Championship stage will serve as the perfect global platform to tell the world this disease NEEDS a cure.
"I've lost too many friends to ALS, and I'm tired of feeling helpless against this horrible disease", said Hartsook. "There is not a doubt in my mind I am capable of finishing the Ironman in KONA, and I want to cross that finish line and hug my friend and tell her she matters, and tell the world ALS NEEDS A CURE".
April has already helped to raise thousands of dollars from individuals and companies who have supported her mission, and that money goes directly to the Blazeman Foundation for ALS (www.waronals.com) and is dispersed with some of the funding going to Grants here in our own community at Wake Forest Baptist Medical Center, who are working to find a cure for ALS.
"I'll be asking for VOTES, and I'll be asking people to donate what they can, if they can. . And if I can compete on the World Stage of IRONMAN and captivate an audience large enough, we can spread the word, bring the awareness needed, and raise funds to help find a cure for this horrible disease. "I want millions of people to know why I'm racing", said Hartsook. "SO OTHERS MAY LIVE".
Congrats Amy...see rocked it...please, In Amy's words...thank you Amy...
Hi Blazedad. So glad to begin my warrior duty. I rolled across the finishline at IM KY yesterday with a 2nd Amateur and 7th OA female, 1st AG placement securing my spot at Kona. 10:25. I will see you and Blazemom on October 13th on the Big Island! Heard words of inspiration along my journey yesterday from fellow athletes commenting on the Blazeman Cause.