Team Blazeman

Believe...Pick a stronger word than Hope...Cure.

blazedad
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  • Seekonk, MA
  • United States
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  • Andrea Lytle Peet
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  • Just B
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  • David S. Leonard Sr.
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Welcome,blazedad...jon's dad.

Latest Activity

blazedad left a comment for Shay Rishoni
"FREEDOM!!!!!!!!!!!!!!!!!!!!! (from ALS)...now a (poet-spirit)...he and Jon, "the-blazeman", (poet-spirit)...will continue to lead us in the "good fight":..WarOnALS...bmom and bdad, Jon's mom and dad."
16 hours ago
blazedad commented on blazedad's video
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Leanda Cave Blazeman Roll at Ironman Panama

""What made Cave so special, though, was her ability to turn that competitive drive on and off - the switch was hit when the gun went off at the start, then turned off once she came across the finish line. For much of her career she would cross…"
Saturday
blazedad commented on blazedad's blog post Inspiring Age Groupers: The Legacy of Jon Blais..."the-blazeman", (alswarriorpoet-spirit).
May 18
blazedad's blog post was featured
May 13
blazedad posted a blog post
May 13
blazedad commented on blazedad's blog post “Expansion of the Blazeman ALS Tissue Collection.”
"On May 2, 2005, twenty-year Multi-Sport veteran Jon Blais a.k.a. "Blazeman" at age 33 was diagnosed with the fatal motor neuron disease ALS (Amyotrophic Lateral Sclerosis). Blazeman dubbed himself the "ALS Warrior Poet" and…"
Apr 30
blazedad commented on blazedad's blog post “Expansion of the Blazeman ALS Tissue Collection.”
"  "Remember the -blazeman (poet-spirit)-Ironman's-Braveheart"."
Apr 30
blazedad posted a status
""Remember the -blazeman (poet-spirit)-Ironman's-Braveheart"."
Apr 30
blazedad commented on blazedad's blog post “Expansion of the Blazeman ALS Tissue Collection.”
Apr 25
blazedad commented on blazedad's blog post “Expansion of the Blazeman ALS Tissue Collection.”
"FREEDOM!!!!! A comment on Jon's the "Last Full Measure"...BF-ALS... the very first "motto" seen on the main page of the Foundation (web-site) @ www.waronals.org lower right side states..."Decision must be…"
Apr 24
blazedad commented on blazedad's blog post “Expansion of the Blazeman ALS Tissue Collection.”
Apr 24
blazedad's blog post was featured

“Expansion of the Blazeman ALS Tissue Collection.”

On May 2, 2005, twenty-year Multi-Sport veteran Jon Blais a.k.a. "Blazeman" at age 33 was diagnosed with the fatal motor neuron disease ALS (Amyotrophic Lateral Sclerosis). Blazeman dubbed himself the "ALS Warrior Poet" and brought his battle to the big island of Hawaii on October 15th that year, where he became the first person with ALS to complete the Ironman World Championships. It was his last race. In 2006, a number of athletes, inspired by Jon's 2005 efforts, rolled across the finish line…See More
Apr 24
blazedad posted a blog post

“Expansion of the Blazeman ALS Tissue Collection.”

On May 2, 2005, twenty-year Multi-Sport veteran Jon Blais a.k.a. "Blazeman" at age 33 was diagnosed with the fatal motor neuron disease ALS (Amyotrophic Lateral Sclerosis). Blazeman dubbed himself the "ALS Warrior Poet" and brought his battle to the big island of Hawaii on October 15th that year, where he became the first person with ALS to complete the Ironman World Championships. It was his last race. In 2006, a number of athletes, inspired by Jon's 2005 efforts, rolled across the finish line…See More
Apr 24
blazedad commented on blazedad's video
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Jon Blais Ceremony

"Jon is believed to be the first person with ALS to attempt the Hawaii Ironman. As Blais put it, "Finishing the race is huge for me. No one is beating ALS. No one has done anything but walk away and die." His resolve to finish the race was…"
Mar 9
blazedad commented on blazedad's video
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jon THE BLAZEMAN blais

"He is believed to be the first person with ALS to attempt the Hawaii Ironman. As Blais put it, "Finishing the race is huge for me. No one is beating ALS. No one has done anything but walk away and die." His resolve to finish the race was…"
Mar 9
blazedad posted a status
Mar 2
blazedad left a comment for Miranda Mode
Feb 22
blazedad's blog post was featured

"An Athletes' Request...Jon's Kona Bib #179 at the 2018 Ironman Texas"..."and the good fight" and (poet-spirit) are going to Texas.

 "Ironman Texas 2018 will be my fifth Ironman, my second in the US and first in my home state. My last Ironman was in 2005...life, work, getting married and having kids somehow got in the way of training and competing. I knew Jon's story back then and for me it added a new dimension of emotion to an already very emotional event. In May of 2017 the wife of a friend, Alison, lost her battle with ALS, then in December, the father of another close friend, Allen was diagnosed with ALS. It was not…See More
Feb 21
blazedad commented on blazedad's blog post ALS..."the good fight"...WarOnALS..."Must be strong for one another", Jon.
"Thank you Thomas...Mary Ann and I so appreciate the kind words and the "remembrance" of (Ironman's-Braveheart)...2005, was the 1st battle of the WarOnALS..."his good fight"...so special that you were able to share that…"
Feb 21
blazedad posted a status
Feb 11

Profile Information

Why did you become a Blazeman Warrior?
Jon Blais..."the -blazeman" is my son, it is our hope, his mother and I to work with every "Blazeman Warrior" to accomplish their goals while at the same time meet ours: raise awareness and funds for ALS research...in the War On ALS...to find a cure..."so others may live".
blazedad...jon's dad.

Despite 21 million(plus) people dying from ALS since 1869, there remains still no meaningful treatment or cure for this disease. Jon and ALS patients everywhere are basically offered the same treatment options as Lou Gehrig in 1939. Without raising awareness and funding, ALS will not receive the research efforts necessary to find a cure and will continue to strike down every person who is diagnosed with ALS...Join Jon, "fight the good fight"...Believe there will be a cure, and "others will live", bmom and bdad...jon's mom and dad.

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Blazedad's Blog

“Expansion of the Blazeman ALS Tissue Collection.”

On May 2, 2005, twenty-year Multi-Sport veteran Jon Blais a.k.a. "Blazeman" at age 33 was diagnosed with the fatal motor neuron disease ALS (Amyotrophic Lateral Sclerosis). Blazeman dubbed himself the "ALS Warrior Poet" and brought his battle to the big island of Hawaii on October 15th that year, where he became the first person with ALS to complete the Ironman World Championships. It was his last race. In 2006, a number of athletes, inspired by Jon's 2005 efforts, rolled across the finish…

Continue

Posted on April 24, 2018 at 1:30pm — 5 Comments

"An Athletes' Request...Jon's Kona Bib #179 at the 2018 Ironman Texas"..."and the good fight" and (poet-spirit) are going to Texas.

 

"Ironman Texas 2018 will be my fifth Ironman, my second in the US and first in my home state. My last Ironman was in 2005...life, work, getting married and having kids somehow got in the way of training and competing. I knew Jon's story back then and for me it added a new dimension of emotion to an already very emotional event. In May of 2017 the wife of a friend, Alison, lost her battle with ALS, then in December, the father of another close friend,…

Continue

Posted on February 21, 2018 at 5:30pm

Providing ALS Tissue to Researchers..."Words of Hope from an ALS Clinic Director".

University of Maryland Brain and Tissue Bank continues to promote the distribution of tissue from their Bank for ALS research to find a cure. The Bank has shipped more samples of ALS tissue over the past 5 months than the past 2 years combined!…

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Posted on February 10, 2018 at 8:30pm — 1 Comment

ALS..."the good fight"...WarOnALS..."Must be strong for one another", Jon.

Jon Blais: challenged ALS, raged against the dying of the light.

"The most important thing in life is not the triumph but the struggle. The essential thing is not to have conquered, but to have fought well.", in ALS...."the good fight" -Baron de Coubertin, founder of the modern Olympic Games

With all the courageous overcomers who have been drawn to Ironman Hawaii, none have exemplified those words better than the Blazeman. Diagnosed with attention deficit disorder as a…

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Posted on December 31, 2017 at 3:21pm — 1 Comment

Comment Wall (85 comments)

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At 9:38am on September 17, 2014, Andrea Lytle Peet said…

Thanks, Bob!  We are putting together our plans and our team and should have some more teammates shortly :)  Keep fighting the great fight!

At 9:20pm on August 30, 2014, Andrea Lytle Peet said…

Thanks blazedad! I would definitely like to talk with you. I look forward to it - I will send you an email. You are in my thoughts as well, especially on Jon's birthday. You're right, we were meant to share.

At 11:51am on June 21, 2014, David S. Leonard Sr. said…

Thanks for the welcome blazedad...I will/my family will give everything I/we have "to fight the fight"..I will post race pictures of the Iron Horse Triathlon when its completed..6/29/2014...A close friend/assistant race director will be racing in Jon's honor(179)...thanks for accepting me into your family..

At 8:15am on October 14, 2013, blazedad said…
Robert Blais... If you will allow me to add a thought...it is really what Jon spoke to in 2006, something that he discovered as he raced his own races and participated with athletes in a sport that they and he loved...when racing for a "cau...se", whatever it was, the race was never defined by PR...DNF...for he knew, whatever the outcome...he could not have a bad race...something bigger than himself was the purpose...thus, in 2006 when he asked the multi-sport community to join him in his cause, (The WarOnALS)...he knew, and said, "maybe we can do something that the word would hear"...what we now define as the "Echo"...whatever is done in the cause, (ALS or???) an "Echo" is created...their voices are heard...Jon believed that we must "fight the good fight"...it must be with (strength, honor and commitment)...and that what we/you do, does "Echo" in eternity"...Gladiator...and that what has been started, must be finished...and, "others will live"...and so in the future we will hear those words never spoken, "I AM AN ALS SURVIVOR"...who knows, maybe at an IMWC...so, Freedom...(from ALS) and whatever your cause will be...G-D bless and thank you...bmom and bdad...for the -blazeman and the BF-ALS.
At 8:58am on August 15, 2013, blazedad said…

From Dan Dortic...
Bob,
"It has been and will always be my pleasure to help continue the
FIGHT. I don't know if you know this but that video is how I learned of Jon and
cannot watch it without feeling empowered while at the same time becoming
completely emotional. Those feelings is what Jon would have wanted athletes and
all people to feel. God Bless the BLAZEMAN for even in death he continues to
motivate, teach, and inspire."
FREEDOM!!
Dan

At 10:08am on August 7, 2013, blazedad said…

Summer Cycling for ALS During the month of August, why not dedicate every mile you ride to the War on ALS?  With help from our friends at Geared for Good, we've started a virtual fundraiser that makes it easy and fun to support the Blazeman Foundation with every pedal stroke.  Our goal: $5,000 by the end of August.  It's free to join, easily integrates with Garmin devices, and if you connect your social media feeds, your network of friends will be reminded each time you ride of your commitment to the cause.  Please join or donate at www.gearedforgood.com/BlazemanSummer.  As a way of saying thanks, every dollar you raise this month qualifies you to win a cycling jersey, courtesy of Geared for Good.  We hope you'll join the fight! Let's do some good this summer... So Others May Live.

Thank you for helping us in the WarOnALS...-blazeman and the Blazeman Foundation for ALS... Freedom...

At 8:28am on April 3, 2013, Diane Casselberry said…

Hello Blaze dad! I left you a message this morning. I have so many questions to ask you, and I'm so excited to join the team! I look forward to speaking with you soon so I can start fundraising :)

At 10:18am on April 2, 2013, Diane Casselberry said…

Thank you for your warm welcome! I am very interested in learning all I can about ALS and how to fundraise for it. My cousin Amy, has yet to tell her children about her diagnosis. While they see her difficulty walking and her parents moving in with them, the kids do not know the severity of the situation. I want to wait to being fundraising for her until she has told them. My plan is to do a little fundraising for both her and to fight ALS, how do I go about doing this? Would I have to do 2 separate fund raising pages, or can I designate like a 70/30 split? I'm really new to this whole thing, but I am committed to doing what I can to help. Thanks for all your help :)

Diane

At 5:02pm on November 12, 2012, John Maurice Hourihane said…

Thankyou Bob.

I sent a donation through the other site. I'll give Andrea a call in the morning.

 

Either way no worries. I look forward to seeing the water station at 3 and will plan drop and roll if I make the (when)  the line.

Thanks for taking the time to talk to me yesterday and today.

Mo

At 9:22am on July 30, 2012, Al Schlebecker said…

Thanks Blazedad! 

 
 
 

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