Believe...Pick a stronger word than Hope...Cure.
Started this discussion. Last reply by blazedad Aug 19, 2017.
Started Apr 14, 2016
Started this discussion. Last reply by blazedad Apr 14, 2016.
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Despite 21 million(plus) people dying from ALS since 1869, there remains still no meaningful treatment or cure for this disease. Jon and ALS patients everywhere are basically offered the same treatment options as Lou Gehrig in 1939. Without raising awareness and funding, ALS will not receive the research efforts necessary to find a cure and will continue to strike down every person who is diagnosed with ALS...Join Jon, "fight the good fight"...Believe there will be a cure, and "others will live", bmom and bdad...jon's mom and dad.
Posted on May 13, 2018 at 1:30pm — 1 Comment
On May 2, 2005, twenty-year Multi-Sport veteran Jon Blais a.k.a. "Blazeman" at age 33 was diagnosed with the fatal motor neuron disease ALS (Amyotrophic Lateral Sclerosis). Blazeman dubbed himself the "ALS Warrior Poet" and brought his battle to the big island of Hawaii on October 15th that year, where he became the first person with ALS to complete the Ironman World Championships. It was his last race. In 2006, a number of athletes, inspired by Jon's 2005 efforts, rolled across the finish…Continue
Posted on April 24, 2018 at 1:30pm — 5 Comments
"Ironman Texas 2018 will be my fifth Ironman, my second in the US and first in my home state. My last Ironman was in 2005...life, work, getting married and having kids somehow got in the way of training and competing. I knew Jon's story back then and for me it added a new dimension of emotion to an already very emotional event. In May of 2017 the wife of a friend, Alison, lost her battle with ALS, then in December, the father of another close friend,…Continue
Posted on February 21, 2018 at 5:30pm
Posted on February 10, 2018 at 8:30pm — 1 Comment
Jon Blais: challenged ALS, raged against the dying of the light.
"The most important thing in life is not the triumph but the struggle. The essential thing is not to have conquered, but to have fought well.", in ALS...."the good fight" -Baron de Coubertin, founder of the modern Olympic Games
With all the courageous overcomers who have been drawn to Ironman Hawaii, none have exemplified those words better than the Blazeman. Diagnosed with attention deficit disorder as a…Continue
Posted on December 31, 2017 at 3:21pm — 1 Comment