The University of Maryland Brain and Tissue Bank acknowledges the recent…
"XTERRA Across America"
Believe...Pick a stronger word than Hope...Cure.
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blazedad
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- Seekonk, MA
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blazedad's Groups
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Kokua Multisports
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O C Blazeman Team # 179
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Need2Tri
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blazedad's Discussions
The -blazeman in a rarely seen note, his "reflections" on ALS and where he was in his life at that time!!!
1 Reply
Started this discussion. Last reply by blazedad Aug 19, 2017.
2006 Emmy Award...IMWC..."the-blazeman", (alswarriorpoet-spirit).
Started Apr 14, 2016
http://www.ironman.com/triathlon-news/articles/2007/05/ironman-celebrates-another-emmy-win.aspx#axzz2Fc5YoBm4
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Started this discussion. Last reply by blazedad Apr 14, 2016.
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Welcome,blazedad...jon's dad.
Latest Activity
blazedad's blog post was featured“Expansion of the Blazeman ALS Tissue Collection.”
Importance of ALS Tissue for ResearchPosted on June 30, 2018 by blazemanThe University of Maryland Brain and Tissue Bank acknowledges the recent expansion of the Blazeman ALS Tissue Collection and how this donation allows them to directly market the availability of ALS Tissue to…See More
blazedad commented on blazedad's blog post “Expansion of the Blazeman ALS Tissue Collection.”""alswarriorpoet-spirits"... even in death, "fighting the good fight"...the ultimate act of generosity, "so others may live". G-D bless and FREEDOM!!! from ALS...(poet-spirits)."
blazedad left a comment for Debra Saltz" "In honor of our 3 "50 Staters" - Debbie, Melinda, and Al."... Steve and Lynda Saltz"
blazedad commented on blazedad's blog post Inspiring Age Groupers: The Legacy of Jon Blais..."the-blazeman", (alswarriorpoet-spirit).blazedad left a comment for Al Schlebecker"Pat Dean
"Good luck, Al. In memory of your wonderful Father and my brother-in-law, Gene.""
blazedad posted a status"Northwestern University (2008-2013) …(New project beginning in 2018 – “Novel Approaches to Treatment in ALS“)."
blazedad's video was featuredIronband - live @ IRONMAN Boulder - Age Group Body, Podium Heart - for the Blazeman
For Jon Blais and the Blazeman Warriors out there...we were thinking about him when this song came together, and when we played it live at IRONMAN Boulder re...
blazedad posted a videoIronband - live @ IRONMAN Boulder - Age Group Body, Podium Heart - for the Blazeman
For Jon Blais and the Blazeman Warriors out there...we were thinking about him when this song came together, and when we played it live at IRONMAN Boulder re...
blazedad posted a status"Important part of the (good fight)...it's the (last full measure) of ":alswarriorpoet-spirits"...FREEDOM!!!"
blazedad commented on blazedad's blog post “Expansion of the Blazeman ALS Tissue Collection.”"Important part of the (good fight)...it's the (last full measure) of ":alswarriorpoet-spirits"...FREEDOM!!!"
Profile Information
- Why did you become a Blazeman Warrior?
- Jon Blais..."the -blazeman" is my son, it is our hope, his mother and I to work with every "Blazeman Warrior" to accomplish their goals while at the same time meet ours: raise awareness and funds for ALS research...in the War On ALS...to find a cure..."so others may live".
blazedad...jon's dad.
Despite 21 million(plus) people dying from ALS since 1869, there remains still no meaningful treatment or cure for this disease. Jon and ALS patients everywhere are basically offered the same treatment options as Lou Gehrig in 1939. Without raising awareness and funding, ALS will not receive the research efforts necessary to find a cure and will continue to strike down every person who is diagnosed with ALS...Join Jon, "fight the good fight"...Believe there will be a cure, and "others will live", bmom and bdad...jon's mom and dad.
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Blazedad's Blog
ALS Research update from Brandeis University...(ALS Research Labs).
Five years ago we created the Blazeman Post-Doc in the Rodal Lab at Brandies University. This collaboration resulted in many accomplishments. End of year 5 report and summary, overall achievements, and letters of thanks from Drs. Rodal and Deshpande.
Letter of Thanks from Dr. Rodal
Letter of Thanks from Blazeman PostDoc…
Posted on June 18, 2018 at 1:30pm — 1 Comment
"An Athletes' Request...Jon's Kona Bib #179 at the 2018 Ironman Texas"..."and the good fight" and (poet-spirit) are going to Texas.
"Ironman Texas 2018 will be my fifth Ironman, my second in the US and first in my home state. My last Ironman was in 2005...life, work, getting married and having kids somehow got in the way of training and competing. I knew Jon's story back then and for me it added a new dimension of emotion to an already very emotional event. In May of 2017 the wife of a friend, Alison, lost her battle with ALS, then in December, the father of another close friend,…
ContinuePosted on February 21, 2018 at 5:30pm
Providing ALS Tissue to Researchers..."Words of Hope from an ALS Clinic Director".
University of Maryland Brain and Tissue Bank continues to promote the distribution of tissue from their Bank for ALS research to find a cure. The Bank has shipped more samples of ALS tissue over the past 5 months than the past 2 years combined!…
ContinuePosted on February 10, 2018 at 8:30pm — 1 Comment
Comment Wall (85 comments)
- At 9:38am on September 17, 2014,
Andrea Lytle Peet said… Thanks, Bob! We are putting together our plans and our team and should have some more teammates shortly :) Keep fighting the great fight!
- At 9:20pm on August 30, 2014, Andrea Lytle Peet said…
Thanks blazedad! I would definitely like to talk with you. I look forward to it - I will send you an email. You are in my thoughts as well, especially on Jon's birthday. You're right, we were meant to share.
- At 11:51am on June 21, 2014,
David S. Leonard Sr. said… Thanks for the welcome blazedad...I will/my family will give everything I/we have "to fight the fight"..I will post race pictures of the Iron Horse Triathlon when its completed..6/29/2014...A close friend/assistant race director will be racing in Jon's honor(179)...thanks for accepting me into your family..
- At 8:15am on October 14, 2013, blazedad said…
- Robert Blais... If you will allow me to add a thought...it is really what Jon spoke to in 2006, something that he discovered as he raced his own races and participated with athletes in a sport that they and he loved...when racing for a "cau...se", whatever it was, the race was never defined by PR...DNF...for he knew, whatever the outcome...he could not have a bad race...something bigger than himself was the purpose...thus, in 2006 when he asked the multi-sport community to join him in his cause, (The WarOnALS)...he knew, and said, "maybe we can do something that the word would hear"...what we now define as the "Echo"...whatever is done in the cause, (ALS or???) an "Echo" is created...their voices are heard...Jon believed that we must "fight the good fight"...it must be with (strength, honor and commitment)...and that what we/you do, does "Echo" in eternity"...Gladiator...and that what has been started, must be finished...and, "others will live"...and so in the future we will hear those words never spoken, "I AM AN ALS SURVIVOR"...who knows, maybe at an IMWC...so, Freedom...(from ALS) and whatever your cause will be...G-D bless and thank you...bmom and bdad...for the -blazeman and the BF-ALS.
- At 8:58am on August 15, 2013, blazedad said…
From Dan Dortic...
Bob,
"It has been and will always be my pleasure to help continue the
FIGHT. I don't know if you know this but that video is how I learned of Jon and
cannot watch it without feeling empowered while at the same time becoming
completely emotional. Those feelings is what Jon would have wanted athletes and
all people to feel. God Bless the BLAZEMAN for even in death he continues to
motivate, teach, and inspire."
FREEDOM!!
Dan
- At 10:08am on August 7, 2013, blazedad said…
Summer Cycling for ALS During the month of August, why not dedicate every mile you ride to the War on ALS? With help from our friends at Geared for Good, we've started a virtual fundraiser that makes it easy and fun to support the Blazeman Foundation with every pedal stroke. Our goal: $5,000 by the end of August. It's free to join, easily integrates with Garmin devices, and if you connect your social media feeds, your network of friends will be reminded each time you ride of your commitment to the cause. Please join or donate at www.gearedforgood.com/BlazemanSummer. As a way of saying thanks, every dollar you raise this month qualifies you to win a cycling jersey, courtesy of Geared for Good. We hope you'll join the fight! Let's do some good this summer... So Others May Live.
Thank you for helping us in the WarOnALS...-blazeman and the Blazeman Foundation for ALS... Freedom...
- At 8:28am on April 3, 2013,
Diane Casselberry said… Hello Blaze dad! I left you a message this morning. I have so many questions to ask you, and I'm so excited to join the team! I look forward to speaking with you soon so I can start fundraising :)
- At 10:18am on April 2, 2013, Diane Casselberry said…
Thank you for your warm welcome! I am very interested in learning all I can about ALS and how to fundraise for it. My cousin Amy, has yet to tell her children about her diagnosis. While they see her difficulty walking and her parents moving in with them, the kids do not know the severity of the situation. I want to wait to being fundraising for her until she has told them. My plan is to do a little fundraising for both her and to fight ALS, how do I go about doing this? Would I have to do 2 separate fund raising pages, or can I designate like a 70/30 split? I'm really new to this whole thing, but I am committed to doing what I can to help. Thanks for all your help :)
Diane
- At 5:02pm on November 12, 2012, John Maurice Hourihane said…
Thankyou Bob.
I sent a donation through the other site. I'll give Andrea a call in the morning.
Either way no worries. I look forward to seeing the water station at 3 and will plan drop and roll if I make the (when) the line.
Thanks for taking the time to talk to me yesterday and today.
Mo
- At 9:22am on July 30, 2012,
Al Schlebecker said… Thanks Blazedad!
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