Believe...Pick a stronger word than Hope...Cure.
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Started this discussion. Last reply by blazedad Aug 19, 2017.
Started Apr 14, 2016
Started this discussion. Last reply by blazedad Apr 14, 2016.
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blazedad's video was featuredblazedad posted a videoblazedad posted a statusblazedad commented on blazedad's blog post “Expansion of the Blazeman ALS Tissue Collection.”blazedad's blog post was featuredblazedad commented on blazedad's blog post “Expansion of the Blazeman ALS Tissue Collection.”blazedad commented on blazedad's blog post ALS Research update from Brandeis University...(ALS Research Labs).blazedad's blog post was featuredblazedad posted a blog postblazedad commented on blazedad's blog post ALS Research update from Brandeis University...(ALS Research Labs).blazedad commented on blazedad's blog post Blazeman Foundation for ALS "Postdoctoral Fellow", Will Examine a (Protein's) effect in Human Cells.blazedad left a comment for Debra Saltzblazedad left a comment for Scott Wertsblazedad commented on blazedad's video
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blazedad's blog post was featuredblazedad commented on blazedad's blog post "An Athlete Roll"..."The Echo"...in the WarOnALS..."so others may live".blazedad commented on blazedad's blog post Inspiring Age Groupers: The Legacy of Jon Blais..."the-blazeman", (alswarriorpoet-spirit).Despite 21 million(plus) people dying from ALS since 1869, there remains still no meaningful treatment or cure for this disease. Jon and ALS patients everywhere are basically offered the same treatment options as Lou Gehrig in 1939. Without raising awareness and funding, ALS will not receive the research efforts necessary to find a cure and will continue to strike down every person who is diagnosed with ALS...Join Jon, "fight the good fight"...Believe there will be a cure, and "others will live", bmom and bdad...jon's mom and dad.
Added by blazedad
Five years ago we created the Blazeman Post-Doc in the Rodal Lab at Brandies University. This collaboration resulted in many accomplishments. End of year 5 report and summary, overall achievements, and letters of thanks from Drs. Rodal and Deshpande.
Letter of Thanks from Dr. Rodal
Letter of Thanks from Blazeman PostDoc…
Posted on June 18, 2018 at 1:30pm — 1 Comment
Posted on May 13, 2018 at 1:30pm — 3 Comments
The University of Maryland Brain and Tissue Bank acknowledges the recent…
Posted on April 24, 2018 at 1:30pm — 8 Comments
"Ironman Texas 2018 will be my fifth Ironman, my second in the US and first in my home state. My last Ironman was in 2005...life, work, getting married and having kids somehow got in the way of training and competing. I knew Jon's story back then and for me it added a new dimension of emotion to an already very emotional event. In May of 2017 the wife of a friend, Alison, lost her battle with ALS, then in December, the father of another close friend,…
ContinuePosted on February 21, 2018 at 5:30pm
University of Maryland Brain and Tissue Bank continues to promote the distribution of tissue from their Bank for ALS research to find a cure. The Bank has shipped more samples of ALS tissue over the past 5 months than the past 2 years combined!…
ContinuePosted on February 10, 2018 at 8:30pm — 1 Comment
Andrea Lytle Peet said… Thanks, Bob! We are putting together our plans and our team and should have some more teammates shortly :) Keep fighting the great fight!
Andrea Lytle Peet said… Thanks blazedad! I would definitely like to talk with you. I look forward to it - I will send you an email. You are in my thoughts as well, especially on Jon's birthday. You're right, we were meant to share.
David S. Leonard Sr. said… Thanks for the welcome blazedad...I will/my family will give everything I/we have "to fight the fight"..I will post race pictures of the Iron Horse Triathlon when its completed..6/29/2014...A close friend/assistant race director will be racing in Jon's honor(179)...thanks for accepting me into your family..
blazedad said… blazedad said… From Dan Dortic...
Bob,
"It has been and will always be my pleasure to help continue the
FIGHT. I don't know if you know this but that video is how I learned of Jon and
cannot watch it without feeling empowered while at the same time becoming
completely emotional. Those feelings is what Jon would have wanted athletes and
all people to feel. God Bless the BLAZEMAN for even in death he continues to
motivate, teach, and inspire."
FREEDOM!!
Dan
blazedad said… Summer Cycling for ALS During the month of August, why not dedicate every mile you ride to the War on ALS? With help from our friends at Geared for Good, we've started a virtual fundraiser that makes it easy and fun to support the Blazeman Foundation with every pedal stroke. Our goal: $5,000 by the end of August. It's free to join, easily integrates with Garmin devices, and if you connect your social media feeds, your network of friends will be reminded each time you ride of your commitment to the cause. Please join or donate at www.gearedforgood.com/BlazemanSummer. As a way of saying thanks, every dollar you raise this month qualifies you to win a cycling jersey, courtesy of Geared for Good. We hope you'll join the fight! Let's do some good this summer... So Others May Live.
Thank you for helping us in the WarOnALS...-blazeman and the Blazeman Foundation for ALS... Freedom...
Diane Casselberry said… Hello Blaze dad! I left you a message this morning. I have so many questions to ask you, and I'm so excited to join the team! I look forward to speaking with you soon so I can start fundraising :)
Diane Casselberry said… Thank you for your warm welcome! I am very interested in learning all I can about ALS and how to fundraise for it. My cousin Amy, has yet to tell her children about her diagnosis. While they see her difficulty walking and her parents moving in with them, the kids do not know the severity of the situation. I want to wait to being fundraising for her until she has told them. My plan is to do a little fundraising for both her and to fight ALS, how do I go about doing this? Would I have to do 2 separate fund raising pages, or can I designate like a 70/30 split? I'm really new to this whole thing, but I am committed to doing what I can to help. Thanks for all your help :)
Diane
John Maurice Hourihane said… Thankyou Bob.
I sent a donation through the other site. I'll give Andrea a call in the morning.
Either way no worries. I look forward to seeing the water station at 3 and will plan drop and roll if I make the (when) the line.
Thanks for taking the time to talk to me yesterday and today.
Mo
Al Schlebecker said… Thanks Blazedad!
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