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Believe...Pick a stronger word than Hope...Cure.

blazedad
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The -blazeman in a rarely seen note, his "reflections" on ALS and where he was in his life at that time!!!

Started yesterday

2006 Emmy Award...IMWC..."the-blazeman", (alswarriorpoet-spirit).

Started Apr 14, 2016

http://www.ironman.com/triathlon-news/articles/2007/05/ironman-celebrates-another-emmy-win.aspx#axzz2Fc5YoBm4
1 Reply

Started this discussion. Last reply by blazedad Apr 14, 2016.

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Welcome,blazedad...jon's dad.

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blazedad's discussion was featured

The -blazeman in a rarely seen note, his "reflections" on ALS and where he was in his life at that time!!!

Dear Kevin,First off, I want to apologize for not getting to you sooner. I want to Thank YOU for your time and effort spent with my Dad, the Vigorman, and the War on ALS. My days are now knowingly numbered and they too often suck... this WAR, is all I've got left in me. So the story goes...I began doing Triathlons back in 1985 and never looked back... to keep a long story short, Kona 2005 was a very bitter sweet day for me. I was a veteran Triathlete with a sub 10 hour Ironman in me. Prior to…See More
yesterday
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blazedad posted a discussion

The -blazeman in a rarely seen note, his "reflections" on ALS and where he was in his life at that time!!!

Dear Kevin,First off, I want to apologize for not getting to you sooner. I want to Thank YOU for your time and effort spent with my Dad, the Vigorman, and the War on ALS. My days are now knowingly numbered and they too often suck... this WAR, is all I've got left in me. So the story goes...I began doing Triathlons back in 1985 and never looked back... to keep a long story short, Kona 2005 was a very bitter sweet day for me. I was a veteran Triathlete with a sub 10 hour Ironman in me. Prior to…See More
yesterday
0 Comments
blazedad commented on blazedad's blog post Reflections from Kenny (Wooman) Woo – Jon’s videographer in Kona, 2005...(IMWC).
"Please...those of us who know and have been personally touched by this disease, ALS... know we can never steady the un-rest of those who will follow...what we can and must do is be strong for one another, believe that one day we will have a…"
Aug 12
blazedad's blog post was featured

Reflections from Kenny (Wooman) Woo – Jon’s videographer in Kona, 2005...(IMWC).

http://waronals.org/wp-content/uploads/2016/03/Wooman-letter.pdfTuesday, June 27th, 2006Blazeman,I have covered a lot of incredible moments in sports over the years including Super Bowls, NBA Finals, US Opens, Final Fours, Tours de France and ten Ironmans, but your performance in 2005's race was the most incredible I've ever witnessed. I have never seen an athlete with more guts and determination as you showed on…See More
Aug 9
3 Comments
blazedad commented on blazedad's blog post Blazeman Foundation for ALS "Postdoctoral Fellow", Will Examine a (Protein's) effect in Human Cells.
"Please let us begin by saying...those of us who know and have been personally touched by this disease, ALS... know we can never steady the un-rest of those who will follow...what we can and must do is be strong for one another, believe that one day…"
Aug 9
blazedad posted a status
"http://waronals.org/research/"
Jul 30
0 Comments
blazedad's blog post was featured

Blazeman Foundation for ALS "Postdoctoral Fellow", Will Examine a (Protein's) effect in Human Cells.

Your donation dollars go directly to supporting ALS research. One means of support is through the Blazeman Post-Doc position at Brandeis University. Training the next generation of ALS researchers is instrumental for finding a cure.Blazeman Foundation for ALS, (Postdoctoral Fellow)...will be looking at the role of the protein ( TDP-43 ) in ALS.         …See More
Jul 30
5 Comments
blazedad updated their profile
Jul 21
blazedad commented on blazedad's blog post Pathology of callosal damage in ALS: An ex-vivo, 7T diffusion tensor MRI study.
"slide_04 slide_05 ALS Tissue Donation Program Impacts Research Posted on July 16, 2017 by blazeman In a collaborative study between the National Institute of Health, the University of Maryland and the University of Michigan,…"
Jul 16
blazedad commented on blazedad's blog post Pathology of callosal damage in ALS: An ex-vivo, 7T diffusion tensor MRI study.
"Objectives: The goal of this study was to better understand the changes in tissue microstructure that underlie white matter diffusion changes in ALS patients. Methods: Diffusion tensor imaging was carried out in postmortem brains of 4 ALS patients…"
Jul 13
blazedad commented on blazedad's blog post Pathology of callosal damage in ALS: An ex-vivo, 7T diffusion tensor MRI study.
"  http://waronals.org/.../03/Blazeman-foundation-statement.pdf   http://waronals.org/.../03/Update-from-the-BTB-5-27-16.pdf"
Jul 12
blazedad's blog post was featured

Pathology of callosal damage in ALS: An ex-vivo, 7T diffusion tensor MRI study.

Cardena et al., NeuroImage (2017) 15, 200-208.In a collaborative study between the National Institute of Health, the University of Maryland and theUniversity of Michigan, researchers used a 7 tesla (high intensity) MRI to image the donated brains fromdonors with ALS and compared the findings to those obtained from donors without ALS. Although themotor symptoms in ALS patients are caused by pathology in the motor regions of the brain and spinalcord, the nerve fibers connecting different regions…See More
Jul 12
4 Comments
blazedad commented on blazedad's blog post Pathology of callosal damage in ALS: An ex-vivo, 7T diffusion tensor MRI study.
"The spinal cord, brain and muscle samples are recovered by the University of Maryland Brain and Tissue Bank, which is supported by a grant from the Blazeman Foundation. Both the Blazeman Foundation and the Brain and Tissue Bank are acknowledged in…"
Jul 12
blazedad posted a blog post

Pathology of callosal damage in ALS: An ex-vivo, 7T diffusion tensor MRI study.

Cardena et al., NeuroImage (2017) 15, 200-208.In a collaborative study between the National Institute of Health, the University of Maryland and theUniversity of Michigan, researchers used a 7 tesla (high intensity) MRI to image the donated brains fromdonors with ALS and compared the findings to those obtained from donors without ALS. Although themotor symptoms in ALS patients are caused by pathology in the motor regions of the brain and spinalcord, the nerve fibers connecting different regions…See More
Jul 12
4 Comments
blazedad left a comment for Shay Rishoni
"​The Shay Rishoni Patient Impact Award 2017 Call for Proposals     ​ The Shay Rishoni Patient Impact Award recognizes and rewards ALS/MND patients whose activities have made significant and outstanding contributions to ALS/MND research…"
Jun 27
blazedad left a comment for Debra Saltz
" Thank you Deb...Without raising awareness and funding, ALS will not receive the research efforts necessary to find a meaningful treatment and cure, and ALS will continue to strike down every person who is diagnosed. To date there are no…"
Jun 20
blazedad left a comment for Brent Bieshaar
"https://www.facebook.com/XterraAcrossAmerica/?hc_location=ufi"
Jun 19
blazedad left a comment for Team Larry
"https://www.facebook.com/groups/1564657233772018/?multi_permalinks=1946863782218026&notif_t=group_activity&notif_id=1497558839728915"
Jun 15
blazedad commented on blazedad's blog post Hsp70 Project Update from Wake Forest...Miles Lyon...Graduate Student and "Blazeman Research Warrior".
"As someone who grew up in a family affected by a motor neuron disease, I knew from an early age I wanted to make an impact in both the patients and families suffering from these traumatic disorders. I know from first-hand experience that these…"
Jun 13
blazedad posted a blog post

Hsp70 Project Update from Wake Forest...Miles Lyon...Graduate Student and "Blazeman Research Warrior".

Dear Mr. and Mrs. Blais, My name is Miles Lyon and I am the student in Dr. Milligan’s lab who is working on the completion of the Hsp70 project. While I know Dr. Milligan does her best to update you with the progress of the project, she is currently being pulled in several directions as head of the neuroscience graduate program, principal investigator of her own lab, and mentor to her students, and even though she is managing that feat day in and day out I asked her if I could  email you myself…See More
Jun 13
1 Comment

Profile Information

Why did you become a Blazeman Warrior?
Jon Blais..."the -blazeman" is my son, it is our hope, his mother and I to work with every "Blazeman Warrior" to accomplish their goals while at the same time meet ours: raise awareness and funds for ALS research...in the War On ALS...to find a cure..."so others may live".
blazedad...jon's dad.

Despite 21 million(plus) people dying from ALS since 1869, there remains still no meaningful treatment or cure for this disease. Jon and ALS patients everywhere are basically offered the same treatment options as Lou Gehrig in 1939. Without raising awareness and funding, ALS will not receive the research efforts necessary to find a cure and will continue to strike down every person who is diagnosed with ALS...Join Jon, "fight the good fight"...Believe there will be a cure, and "others will live", bmom and bdad...jon's mom and dad.

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Blazedad's Blog

Pathology of callosal damage in ALS: An ex-vivo, 7T diffusion tensor MRI study.

Cardena et al., NeuroImage (2017) 15, 200-208.…
Continue

Posted on July 12, 2017 at 1:00pm — 4 Comments

Hsp70 Project Update from Wake Forest...Miles Lyon...Graduate Student and "Blazeman Research Warrior".



Dear Mr. and Mrs. Blais,

 

My name is Miles Lyon and I am the student in Dr. Milligan’s lab who is working on the completion of the Hsp70 project. While I know Dr. Milligan does her best to update you with the…

Continue

Posted on June 13, 2017 at 12:14pm — 1 Comment

Blazeman Foundation for ALS "Postdoctoral Fellow", Will Examine a (Protein's) effect in Human Cells.

Your donation dollars go directly to supporting ALS research. One means of support is through the Blazeman Post-Doc position at Brandeis University. Training the next generation of ALS researchers is instrumental for finding a cure.

Blazeman Foundation for ALS, (Postdoctoral Fellow)...will be looking at the role of the protein ( TDP-43 ) in ALS.         …

Continue

Posted on June 10, 2017 at 12:00pm — 5 Comments

Reflections from Kenny (Wooman) Woo – Jon’s videographer in Kona, 2005...(IMWC).

http://waronals.org/wp-content/uploads/2016/03/Wooman-letter.pdf

Tuesday, June 27th, 2006

Blazeman,

I have covered a lot of incredible moments in sports over the years including Super Bowls, NBA Finals, US Opens, Final Fours, Tours de France and ten Ironmans, but your performance in 2005's race was the most incredible I've ever…

Continue

Posted on June 7, 2017 at 11:47am — 3 Comments

ALS Research update from Brandeis University...(ALS Research Labs).

Dr. Rodal’s lab continues to investigate  how TDP-43 leads to growth signaling defects in the fruit fly model as well as  continuing to pursue the role of calcium channels in their mammalian models of ALS. Their progress report summarizes the past four years of research supported by the BMF and gives a look into next steps (how relevant are these pathways for progression of cellular pathology in…

Continue

Posted on May 29, 2017 at 12:46pm — 1 Comment

Comment Wall (85 comments)

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At 9:38am on September 17, 2014, Andrea Lytle Peet said…

Thanks, Bob!  We are putting together our plans and our team and should have some more teammates shortly :)  Keep fighting the great fight!

At 9:20pm on August 30, 2014, Andrea Lytle Peet said…

Thanks blazedad! I would definitely like to talk with you. I look forward to it - I will send you an email. You are in my thoughts as well, especially on Jon's birthday. You're right, we were meant to share.

At 11:51am on June 21, 2014, David S. Leonard Sr. said…

Thanks for the welcome blazedad...I will/my family will give everything I/we have "to fight the fight"..I will post race pictures of the Iron Horse Triathlon when its completed..6/29/2014...A close friend/assistant race director will be racing in Jon's honor(179)...thanks for accepting me into your family..

At 8:15am on October 14, 2013, blazedad said…
Robert Blais... If you will allow me to add a thought...it is really what Jon spoke to in 2006, something that he discovered as he raced his own races and participated with athletes in a sport that they and he loved...when racing for a "cau...se", whatever it was, the race was never defined by PR...DNF...for he knew, whatever the outcome...he could not have a bad race...something bigger than himself was the purpose...thus, in 2006 when he asked the multi-sport community to join him in his cause, (The WarOnALS)...he knew, and said, "maybe we can do something that the word would hear"...what we now define as the "Echo"...whatever is done in the cause, (ALS or???) an "Echo" is created...their voices are heard...Jon believed that we must "fight the good fight"...it must be with (strength, honor and commitment)...and that what we/you do, does "Echo" in eternity"...Gladiator...and that what has been started, must be finished...and, "others will live"...and so in the future we will hear those words never spoken, "I AM AN ALS SURVIVOR"...who knows, maybe at an IMWC...so, Freedom...(from ALS) and whatever your cause will be...G-D bless and thank you...bmom and bdad...for the -blazeman and the BF-ALS.
At 8:58am on August 15, 2013, blazedad said…

From Dan Dortic...
Bob,
"It has been and will always be my pleasure to help continue the
FIGHT. I don't know if you know this but that video is how I learned of Jon and
cannot watch it without feeling empowered while at the same time becoming
completely emotional. Those feelings is what Jon would have wanted athletes and
all people to feel. God Bless the BLAZEMAN for even in death he continues to
motivate, teach, and inspire."
FREEDOM!!
Dan

At 10:08am on August 7, 2013, blazedad said…

Summer Cycling for ALS During the month of August, why not dedicate every mile you ride to the War on ALS?  With help from our friends at Geared for Good, we've started a virtual fundraiser that makes it easy and fun to support the Blazeman Foundation with every pedal stroke.  Our goal: $5,000 by the end of August.  It's free to join, easily integrates with Garmin devices, and if you connect your social media feeds, your network of friends will be reminded each time you ride of your commitment to the cause.  Please join or donate at www.gearedforgood.com/BlazemanSummer.  As a way of saying thanks, every dollar you raise this month qualifies you to win a cycling jersey, courtesy of Geared for Good.  We hope you'll join the fight! Let's do some good this summer... So Others May Live.

Thank you for helping us in the WarOnALS...-blazeman and the Blazeman Foundation for ALS... Freedom...

At 8:28am on April 3, 2013, Diane Casselberry said…

Hello Blaze dad! I left you a message this morning. I have so many questions to ask you, and I'm so excited to join the team! I look forward to speaking with you soon so I can start fundraising :)

At 10:18am on April 2, 2013, Diane Casselberry said…

Thank you for your warm welcome! I am very interested in learning all I can about ALS and how to fundraise for it. My cousin Amy, has yet to tell her children about her diagnosis. While they see her difficulty walking and her parents moving in with them, the kids do not know the severity of the situation. I want to wait to being fundraising for her until she has told them. My plan is to do a little fundraising for both her and to fight ALS, how do I go about doing this? Would I have to do 2 separate fund raising pages, or can I designate like a 70/30 split? I'm really new to this whole thing, but I am committed to doing what I can to help. Thanks for all your help :)

Diane

At 5:02pm on November 12, 2012, John Maurice Hourihane said…

Thankyou Bob.

I sent a donation through the other site. I'll give Andrea a call in the morning.

 

Either way no worries. I look forward to seeing the water station at 3 and will plan drop and roll if I make the (when)  the line.

Thanks for taking the time to talk to me yesterday and today.

Mo

At 9:22am on July 30, 2012, Al Schlebecker said…

Thanks Blazedad! 

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