All Blog Posts (197)

Mary Ann, I heard the announcer tell the story as I rolled across the finish line. He really HONORED Jon with his words. It was an amazing moment...... And I agree with Peter. When I started this journey, I knew it was key to tell Jon's story. His story moves people like few I have ever heard. His story moved me beyond ANY I have ever heard. There would be little difference between the WAR ON…

"Athletes' roll" for...(awareness and a cure), capturing the -blazeman's spirit by "fighting the good fight"...by believing we can do more...and someday we will hear the words never spoken, "I Am An ALS Survivor"...it will be because so many have a "cause" bigger than the self..."that others may live"...G-D bless and thank you all...FREEDOM!!!!!!!!!!!!!! your friend, "the-blazeman", (alswarriorpoet-spirit)...and the (poets)...their families and…

http://grfx.cstv.com/photos/schools/csno/sports/w-baskbl/auto_pdf/NSAD.pdf

Re: Jon's story is ready to inspire... (Triathlon Inspires)..

Dear Mrs. Blais:



I want to personally thank you for all the time and patience during this process. Jon's story is now live at triathloninspires.com. It is a real honor having Jon as a featured athlete at Triathlon Inspires...thank you again.



I want you to know  that you really touched my heart after reading what you wrote as part of Jon's story... "Our mission and commitment is to find a cure and…

Commitment Must Be Total was one of Jon's earlier slogans. We are happy to share this most recent commitment from Wake Forest Innovations regarding the hsp70 research at Wake Forest University.

                                                                     www.waronals.org

In Jon's own words...now an (alswarriorpoet-spirit)....

"Mo...chuisle"...FREEDOM!!! (In Strength, Honor and Commitment), your friend, "the-blazeman"...(alswarriorpoet-spirit).

WHY SUPPORT BLAZEMAN FOUNDATION?

Utilizing Blazeman's War on ALS...Multi-Sport ...…

Why Fund ALS Research

The following are excerpts from our interview and an article written by and about the research done by Carol Milligan, Ph.D. Director of the ALS Center Translational Science Unit, Director at Wake Forest School of Medicine– a program funded by the Blazeman Foundation’s warriors, donors and supporters. Your donations at work!…

Jon Blais: challenged ALS, raged against the dying of the light....

Written by Timothy Carlson

 "The most important thing in life is not the triumph but the struggle. The essential thing is not to have conquered, but to have fought well."  -Baron de Coubertin, founder of the modern Olympic Games

With all the courageous overcomers who have been drawn to Ironman Hawaii, none have exemplified those words better than the Blazeman.…

In 2007 IMWC...NBC... WTC tribute, where they said goodbye to the -blazeman and expressed the hope that maybe someday there would be a cure and that Jon's Foundation would be involved...(http://www.youtube.com/watch?v=qPeEjaTHF1E&feature=youtu.be&t=55m56s) to this, we are dedicated...and so we "warrior on"...through Team Blazeman...and now with you...and…

Our work is supported by the Blazeman Foundation for ALS, an organization that has been working for years to raise awareness of ALS and funding towards a cure. They are blown away by how powerful the ice bucket challenge has been in both educating the public and raising funds for research. Finding a cure may not be as easy as dumping an ice bucket on your head, but support for research is the first essential step…

The 2006 Ford Ironman World Championship broadcast, taped on location in Kailua-Kona, Hawaii, on October 21, 2006, received an Emmy Award at Monday night’s 28th Annual Sports Emmy Awards Ceremony. With a fifth win in the category of Outstanding Edited Sports Special, one of the highest honors, Ironman has now captured 14 Emmy awards to date. "Ironman is full of inspirational stories, but there is one particular story I wish to share with you tonight. In 2005, an athlete suffering from ALS…

Milligan Lab Hsp70 Project Update

June 2014

Researchers at Wake Forest Baptist Medical Center are looking for ways to treat the debilitating disease, Amyotrophic Lateral Sclerosis (ALS), which is also known as Lou Gehrig’s Disease. In previous research, Dr. Carol Milligan and colleagues found that administration of “heat shock” proteins to mice actually delayed the onset of ALS symptoms and extended survival times. One of the most interesting results was that the loss…

Hi all Blazeman Warriors.  I am heading up the Blazeman Foundation Aid Station at this year’s Inaugural Boulder IRONMAN, on August 3rd

If you would like to sign up please use the link below and sign up for any shift you would like.  I will be there all day and would like to have as many warriors represented as possible.

volunteers sign up at:…

"The main goal of the current project is to understand how these survival signals are sorted into endosomes and transported within the neuron, and how mutations causing ALS alter this process."

" By understanding specifically how growth and survival signals are being diverted from their normal itinerary in diseased neurons, it will be possible to develop new therapies to…

The Blazeman Foundation for ALS and the NICHD Brain and Tissue Bank have joined efforts to speed research on ALS (Amyotrophic Lateral Sclerosis, commonly referred to as Lou Gehrig’s Disease).

The study of post-mortem tissue from individuals with ALS is critical to finding the cause of ALS. If you have decided to become a potential tissue donor, you are encouraged to register with the NICHD Brain and Tissue…