Team Blazeman

Believe...Pick a stronger word than Hope...Cure.

Featured Blog Posts (132)

Reflections from Kenny (Wooman) Woo – Jon’s videographer in Kona, 2005...(IMWC).

http://waronals.org/wp-content/uploads/2016/03/Wooman-letter.pdf

Tuesday, June 27th, 2006

Blazeman,

I have covered a lot of incredible moments in sports over the years including Super Bowls, NBA Finals, US Opens, Final Fours, Tours de France and ten Ironmans, but your performance in 2005's race was the most incredible I've ever…

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Added by blazedad on June 7, 2017 at 11:47am — 3 Comments

Blazeman Foundation for ALS "Postdoctoral Fellow", Will Examine a (Protein's) effect in Human Cells.

Your donation dollars go directly to supporting ALS research. One means of support is through the Blazeman Post-Doc position at Brandeis University. Training the next generation of ALS researchers is instrumental for finding a cure.

Blazeman Foundation for ALS, (Postdoctoral Fellow)...will be looking at the role of the protein ( TDP-43 ) in ALS.         …

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Added by blazedad on June 10, 2017 at 12:00pm — 5 Comments

Pathology of callosal damage in ALS: An ex-vivo, 7T diffusion tensor MRI study.

Cardena et al., NeuroImage (2017) 15, 200-208.…
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Added by blazedad on July 12, 2017 at 1:00pm — 4 Comments

ALS Research update from Brandeis University...(ALS Research Labs).

Dr. Rodal’s lab continues to investigate  how TDP-43 leads to growth signaling defects in the fruit fly model as well as  continuing to pursue the role of calcium channels in their mammalian models of ALS. Their progress report summarizes the past four years of research supported by the BMF and gives a look into next steps (how relevant are these pathways for progression of cellular pathology in…

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Added by blazedad on May 29, 2017 at 12:46pm — 1 Comment

Jon Blais: challenged ALS, raged against the dying of the light...he fought his "good fight"...his (WarOnALS)...he won his FREEDOM..

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Jon Blais: challenged ALS, raged against the dying of the light...he fought his "good fight"...his (WarOnALS)...he won his FREEDOM..

10 yrs to this day at 8:30 p.m. (est)...Tim Carlson described his "good fight" with theses words...Mary Ann and I have read them...and are extremely greatfull for this "kindness", thank you, Tim...bmom and bdad...Jon's mom and dad.

"The most important thing in life…

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Added by blazedad on May 27, 2017 at 6:30pm — 3 Comments

The Importance of Tissue Donation to find a Cure.

Importance of Tissue Donation to find a cure

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Added by blazedad on April 30, 2017 at 5:00pm — 4 Comments

Blazeman Foundation for ALS...(Post Doctoral-Fellow)...Research...Brandeis University.

Dr. Mugdha Deshpande
Blazeman Postdoctoral Fellow for ALS Research
I graduated from Texas A&M University at College Station, Texas, with a Ph.D. in Biology. My thesis work focused on…
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Added by blazedad on April 30, 2017 at 12:00pm — 1 Comment

"Remembering the -blazeman-Ironman's-Braveheart"

Being that the baseball season is now upon us, please allow me to share the most wonderful and uplifting comments we recieved a few years back...it remembers Jon...thank you Mary Ann for the kindness and your inspiring words...

“I first saw your incredible story while watching the 2005 Ironman. As an avid baseball history fan I consider Lou Gehrig one of the greatest because he was likely the first to…

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Added by blazedad on March 22, 2017 at 2:30pm — 1 Comment

Wake Forest Hsp70 research update...ALS

The Mulligan Lab is currently completing treatments of the SOD1G93A mouse model of ALS with four different doses of the Hsp70 protein and hopes to have the dose response study complete by the end of March/mid-April. With positive results (hopefully), our ALS scientists and clinicians will begin to design initial clinical trials in patients.…

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Added by blazedad on February 21, 2017 at 1:00pm — 3 Comments

Happy New Year...what are our plans?..."Going to pick a fight with ALS"...-blazeman.

We will be in preparation to "fight another year in the WarOnALS"...the…

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Added by blazedad on January 2, 2013 at 3:38pm — 2 Comments

How Long Is Long?...When It Is No Longer!!

"Research"..."So bench to bedside"...(BF-ALS)...ALS since 1869, there hasn’t been any significant improvement in the treatment or cure of this disease...read this "researcher's words"...then you can understand...but must "believe"...bdad. Yes, we started in the early 2000’s with cells in a dish. Actually, in 1981 if you trace back to Mike’s original study. And, after all this,…
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Added by blazedad on December 22, 2016 at 5:02pm — No Comments

"RESEARCH"...BLAZEMAN FOUNDATION-ALS

As the year closes down, thoughts of loved ones come to mind..."Christmas" is felt everwhere...what gifts would we all like?...what could we share that would affect many..."health and happines"...for some, the thought of a world free from ALS..."so others may and would live"...that fills our thoughts always, and we know that only by and with you is it possible..."research into this disease is key"...so, if your thoughts are to support all kinds of endeavors in these areas...we thank…

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Added by blazedad on December 18, 2016 at 4:00pm — 2 Comments

"An Athlete Roll"..."The Echo"...in the WarOnALS..."so others may live".

"Athlete Roll"...a call for Freedom...(from ALS)...listen, this is the "echo" that is present in the WarOnALS...remembering that Jon's Foundation and all "warriors" (raise awareness...support research...and continue to seek a meaningful treatment and cure)...thank you, "the-blazeman", (alswarriorpoet-spirit)...and all poets, poet-spirits, their families and friends...G-D bless, bmom and bdad...BF-ALS...@…

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Added by blazedad on November 18, 2016 at 1:18pm — No Comments

"What is your (echo)..."cause"...whatever, you will make a difference":.

Robert Blais... If you will allow me to add a thought...it is really what Jon spoke to in 2006, something that he discovered as he raced his own races and participated with athletes in a sport that they and he loved...when racing for a "cause", whatever it was, the race was never defined by PR...DNF...for he knew, whatever the outcome...he could not have a bad race...something bigger than himself was the purpose...thus, in 2006 when he asked the multi-sport community to join…

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Added by blazedad on October 29, 2016 at 2:00pm — 2 Comments

"Competitor #179"...Jon Blais...IMWC...2005 and Al Trautwig.

As He is and will forever be remembered..."Competitor #179"..."the-blazeman"...(alswarriorpoet)...now an (alswarriorpoet-spirit)...FREEDOM!!!
https://www.youtube.com/watch?v=9Vrjp2P0GlE

Added by blazedad on September 8, 2016 at 1:50pm — 3 Comments

Wake Forest Research Update – Your Donation Dollars at Work! "G-D bless and Thank you".

"Believe...Pick a Stronger word than Hope...Cure", "the-blazeman", (alswarriorpoet-spirit).

Posted on September 18, 2016

An update on the…

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Added by blazedad on September 19, 2016 at 12:11pm — No Comments

Brandeis University..."Research Group Makes Progress in the WarOnALS"..."fight with ALS".

http://waronals.org/2016/09/04/brandeis-research-group-makes-progress-fight-als/

A Brandeis researcher found and fixed an abnormality in flies’ nervous system, restoring their ability to crawl. Understanding what goes wrong inside nerve cells could have implications for human…

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Added by blazedad on September 5, 2016 at 3:30pm — 2 Comments

Giant Steps Award-2008 "A Hero Amongst Us", (NCAS).

2008 Giant Steps Award – A Hero Amongst Us(NCAS) http://grfx.cstv.com/.../sports/w-baskbl/auto_pdf/NSAD.pdf

Added by blazedad on September 6, 2016 at 1:33pm — 2 Comments

Progress in the fight against ALS

"The discovery represents a significant breakthrough in our understanding of what goes wrong in ALS when signals…

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Added by blazedad on August 30, 2016 at 8:00am — 4 Comments

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