Team Blazeman

Believe...Pick a stronger word than Hope...Cure.

Blazedad's Blog (148)

"An Athletes' Request...Jon's Kona Bib #179 at the 2018 Ironman Texas"..."and the good fight" and (poet-spirit) are going to Texas.


"Ironman Texas 2018 will be my fifth Ironman, my second in the US and first in my home state. My last Ironman was in, work, getting married and having kids somehow got in the way of training and competing. I knew Jon's story back then and for me it added a new dimension of emotion to an already very emotional event. In May of 2017 the wife of a friend, Alison, lost her battle with ALS, then in December, the father of another close friend,…


Added by blazedad on February 21, 2018 at 5:30pm — No Comments

Providing ALS Tissue to Researchers..."Words of Hope from an ALS Clinic Director".

University of Maryland Brain and Tissue Bank continues to promote the distribution of tissue from their Bank for ALS research to find a cure. The Bank has shipped more samples of ALS tissue over the past 5 months than the past 2 years combined!…


Added by blazedad on February 10, 2018 at 8:30pm — 1 Comment

ALS..."the good fight"...WarOnALS..."Must be strong for one another", Jon.

Jon Blais: challenged ALS, raged against the dying of the light.

"The most important thing in life is not the triumph but the struggle. The essential thing is not to have conquered, but to have fought well.", in ALS...."the good fight" -Baron de Coubertin, founder of the modern Olympic Games

With all the courageous overcomers who have been drawn to Ironman Hawaii, none have exemplified those words better than the Blazeman. Diagnosed with attention deficit disorder as a…


Added by blazedad on December 31, 2017 at 3:21pm — 1 Comment

Blazeman Foundation for ALS, MA...INC.

                                                       "So Others May Live"

Thank you...Jon had a discription of a warrior..."constant warrior"...from the belief that until we heard the words, "I Am AN ALS SURVIVOR"...for all...we had a fight, "the goood fight"...WarOnALS..."so others may live"...FREEDOM!!!!!!!!

The Blazeman Foundation rose out of efforts from Jon’s own…


Added by blazedad on December 23, 2017 at 1:00pm — 1 Comment

Freezer Donations...Univ.of MD Sch of Medicine-(Brain & Tissue Institute)..."A Morale Imperative".

A comment on Jon's the "Last Full Measure"...Blazeman Foundation-ALS...Jon's, the very first "motto" seen on the main page of the Foundation (web-site) @…


Added by blazedad on September 10, 2017 at 4:30pm — 5 Comments

Pathology of callosal damage in ALS: An ex-vivo, 7T diffusion tensor MRI study.

Cardena et al., NeuroImage (2017) 15, 200-208.…

Added by blazedad on July 12, 2017 at 1:00pm — 4 Comments

Hsp70 Project Update from Wake Forest...Miles Lyon...Graduate Student and "Blazeman Research Warrior".

Dear Mr. and Mrs. Blais,


My name is Miles Lyon and I am the student in Dr. Milligan’s lab who is working on the completion of the Hsp70 project. While I know Dr. Milligan does her best to update you with the…


Added by blazedad on June 13, 2017 at 12:14pm — 1 Comment

Blazeman Foundation for ALS "Postdoctoral Fellow", Will Examine a (Protein's) effect in Human Cells.

Your donation dollars go directly to supporting ALS research. One means of support is through the Blazeman Post-Doc position at Brandeis University. Training the next generation of ALS researchers is instrumental for finding a cure.

Blazeman Foundation for ALS, (Postdoctoral Fellow)...will be looking at the role of the protein ( TDP-43 ) in ALS.         …


Added by blazedad on June 10, 2017 at 12:00pm — 5 Comments

Reflections from Kenny (Wooman) Woo – Jon’s videographer in Kona, 2005...(IMWC).

Tuesday, June 27th, 2006


I have covered a lot of incredible moments in sports over the years including Super Bowls, NBA Finals, US Opens, Final Fours, Tours de France and ten Ironmans, but your performance in 2005's race was the most incredible I've ever…


Added by blazedad on June 7, 2017 at 11:47am — 3 Comments

ALS Research update from Brandeis University...(ALS Research Labs).

Dr. Rodal’s lab continues to investigate  how TDP-43 leads to growth signaling defects in the fruit fly model as well as  continuing to pursue the role of calcium channels in their mammalian models of ALS. Their progress report summarizes the past four years of research supported by the BMF and gives a look into next steps (how relevant are these pathways for progression of cellular pathology in…


Added by blazedad on May 29, 2017 at 12:46pm — 1 Comment

Jon Blais: challenged ALS, raged against the dying of the light...he fought his "good fight"...his (WarOnALS)...he won his FREEDOM..


Jon Blais: challenged ALS, raged against the dying of the light...he fought his "good fight"...his (WarOnALS)...he won his FREEDOM..

10 yrs to this day at 8:30 p.m. (est)...Tim Carlson described his "good fight" with theses words...Mary Ann and I have read them...and are extremely greatfull for this "kindness", thank you, Tim...bmom and bdad...Jon's mom and dad.

"The most important thing in life…


Added by blazedad on May 27, 2017 at 6:30pm — 3 Comments

The Importance of Tissue Donation to find a Cure.

Importance of Tissue Donation to find a cure


Added by blazedad on April 30, 2017 at 5:00pm — 4 Comments

Blazeman Foundation for ALS...(Post Doctoral-Fellow)...Research...Brandeis University.

Dr. Mugdha Deshpande
Blazeman Postdoctoral Fellow for ALS Research
I graduated from Texas A&M University at College Station, Texas, with a Ph.D. in Biology. My thesis work focused on…

Added by blazedad on April 30, 2017 at 12:00pm — 1 Comment

"Remembering the -blazeman-Ironman's-Braveheart"

Being that the baseball season is now upon us, please allow me to share the most wonderful and uplifting comments we recieved a few years remembers Jon...thank you Mary Ann for the kindness and your inspiring words...

“I first saw your incredible story while watching the 2005 Ironman. As an avid baseball history fan I consider Lou Gehrig one of the greatest because he was likely the first to…


Added by blazedad on March 22, 2017 at 2:30pm — 1 Comment

Wake Forest Hsp70 research update...ALS

The Mulligan Lab is currently completing treatments of the SOD1G93A mouse model of ALS with four different doses of the Hsp70 protein and hopes to have the dose response study complete by the end of March/mid-April. With positive results (hopefully), our ALS scientists and clinicians will begin to design initial clinical trials in patients.…


Added by blazedad on February 21, 2017 at 1:00pm — 3 Comments

How Long Is Long?...When It Is No Longer!!

"Research"..."So bench to bedside"...(BF-ALS)...ALS since 1869, there hasn’t been any significant improvement in the treatment or cure of this this "researcher's words"...then you can understand...but must "believe"...bdad. Yes, we started in the early 2000’s with cells in a dish. Actually, in 1981 if you trace back to Mike’s original study. And, after all this,…

Added by blazedad on December 22, 2016 at 5:02pm — No Comments


As the year closes down, thoughts of loved ones come to mind..."Christmas" is felt everwhere...what gifts would we all like?...what could we share that would affect many..."health and happines"...for some, the thought of a world free from ALS..."so others may and would live"...that fills our thoughts always, and we know that only by and with you is it possible..."research into this disease is key", if your thoughts are to support all kinds of endeavors in these areas...we thank…


Added by blazedad on December 18, 2016 at 4:00pm — 2 Comments

"An Athlete Roll"..."The Echo" the WarOnALS..."so others may live".

"Athlete Roll"...a call for Freedom...(from ALS)...listen, this is the "echo" that is present in the WarOnALS...remembering that Jon's Foundation and all "warriors" (raise research...and continue to seek a meaningful treatment and cure)...thank you, "the-blazeman", (alswarriorpoet-spirit)...and all poets, poet-spirits, their families and friends...G-D bless, bmom and bdad...BF-ALS...@…


Added by blazedad on November 18, 2016 at 1:18pm — No Comments

"What is your (echo)..."cause"...whatever, you will make a difference":.

Robert Blais... If you will allow me to add a is really what Jon spoke to in 2006, something that he discovered as he raced his own races and participated with athletes in a sport that they and he loved...when racing for a "cause", whatever it was, the race was never defined by PR...DNF...for he knew, whatever the outcome...he could not have a bad race...something bigger than himself was the purpose...thus, in 2006 when he asked the multi-sport community to join…


Added by blazedad on October 29, 2016 at 2:00pm — 2 Comments

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