A new research article…
Believe...Pick a stronger word than Hope...Cure.
Five years ago we created the Blazeman Post-Doc in the Rodal Lab at Brandies University. This collaboration resulted in many accomplishments. End of year 5 report and summary, overall achievements, and letters of thanks from Drs. Rodal and Deshpande.
Letter of Thanks from Dr. Rodal
Letter of Thanks from Blazeman PostDoc…
On May 2, 2005, twenty-year Multi-Sport veteran Jon Blais a.k.a. "Blazeman" at age 33 was diagnosed with the fatal motor neuron disease ALS (Amyotrophic Lateral Sclerosis). Blazeman dubbed himself the "ALS Warrior Poet" and brought his battle to the big island of Hawaii on October 15th that year, where he became the first person with ALS to complete the Ironman World Championships. It was his last race. In 2006, a number of athletes, inspired by Jon's 2005 efforts, rolled across the finish…Continue
"Ironman Texas 2018 will be my fifth Ironman, my second in the US and first in my home state. My last Ironman was in 2005...life, work, getting married and having kids somehow got in the way of training and competing. I knew Jon's story back then and for me it added a new dimension of emotion to an already very emotional event. In May of 2017 the wife of a friend, Alison, lost her battle with ALS, then in December, the father of another close friend,…Continue
Added by blazedad on February 21, 2018 at 5:30pm — No Comments
University of Maryland Brain and Tissue Bank continues to promote the distribution of tissue from their Bank for ALS research to find a cure. The Bank has shipped more samples of ALS tissue over the past 5 months than the past 2 years combined!…Continue
Jon Blais: challenged ALS, raged against the dying of the light.
"The most important thing in life is not the triumph but the struggle. The essential thing is not to have conquered, but to have fought well.", in ALS...."the good fight" -Baron de Coubertin, founder of the modern Olympic Games
With all the courageous overcomers who have been drawn to Ironman Hawaii, none have exemplified those words better than the Blazeman. Diagnosed with attention deficit disorder as a…Continue
"So Others May Live"
Thank you...Jon had a discription of a warrior..."constant warrior"...from the belief that until we heard the words, "I Am AN ALS SURVIVOR"...for all...we had a fight, "the goood fight"...WarOnALS..."so others may live"...FREEDOM!!!!!!!!
The Blazeman Foundation rose out of efforts from Jon’s own…
A new research article…
A comment on Jon's the "Last Full Measure"...Blazeman Foundation-ALS...Jon's, the very first "motto" seen on the main page of the Foundation (web-site) @ www.waronals.org…Continue
Dear Mr. and Mrs. Blais,
My name is Miles Lyon and I am the student in Dr. Milligan’s lab who is working on the completion of the Hsp70 project. While I know Dr. Milligan does her best to update you with the…
Your donation dollars go directly to supporting ALS research. One means of support is through the Blazeman Post-Doc position at Brandeis University. Training the next generation of ALS researchers is instrumental for finding a cure.
Blazeman Foundation for ALS, (Postdoctoral Fellow)...will be looking at the role of the protein ( TDP-43 ) in ALS. …Continue
Tuesday, June 27th, 2006
I have covered a lot of incredible moments in sports over the years including Super Bowls, NBA Finals, US Opens, Final Fours, Tours de France and ten Ironmans, but your performance in 2005's race was the most incredible I've ever…Continue
Dr. Rodal’s lab continues to investigate how TDP-43 leads to growth signaling defects in the fruit fly model as well as continuing to pursue the role of calcium channels in their mammalian models of ALS. Their progress report summarizes the past four years of research supported by the BMF and gives a look into next steps (how relevant are these pathways for progression of cellular pathology in…Continue
Jon Blais: challenged ALS, raged against the dying of the light...he fought his "good fight"...his (WarOnALS)...he won his FREEDOM..
10 yrs to this day at 8:30 p.m. (est)...Tim Carlson described his "good fight" with theses words...Mary Ann and I have read them...and are extremely greatfull for this "kindness", thank you, Tim...bmom and bdad...Jon's mom and dad.
"The most important thing in life…
Being that the baseball season is now upon us, please allow me to share the most wonderful and uplifting comments we recieved a few years back...it remembers Jon...thank you Mary Ann for the kindness and your inspiring words...
“I first saw your incredible story while watching the 2005 Ironman. As an avid baseball history fan I consider Lou Gehrig one of the greatest because he was likely the first to…
The Mulligan Lab is currently completing treatments of the SOD1G93A mouse model of ALS with four different doses of the Hsp70 protein and hopes to have the dose response study complete by the end of March/mid-April. With positive results (hopefully), our ALS scientists and clinicians will begin to design initial clinical trials in patients.…Continue
Added by blazedad on December 22, 2016 at 5:02pm — No Comments