It is with great appreciation, I want to share this most recent communication received from Dr Morton Schapiro, President and Professor, Northwestern University, Evanston, Illinois 60208-1100.
This letter was directed to me, as President of the Blazeman Foundation for ALS...but, it is really for all of you, the Warriors...Supporters...Participants...fighting the battles that must be fougth and won in this War On ALS..."so others may live".
Please accept the Foundations deepest appreciation, when reading this letter, it is directed to you...you are the reason we are making progress in better understanding this disease(ALS)...and making strides forward to a possible treatmant and a cure, please...
"Believe...Pick a stronger word than Hope...Cure". -blazeman.
January 14, 2010
Mr. Robert D. Blais
Blazeman Foundation for ALS
20 Commerce Way
Post Mail box 283
Dear Mr. Blais:
It is with great pleasure that I offer my gratitude for the Blazeman Foundation for ALS's recent pledge and first payment in support of Dr. Teepu Siddique's two-year project, "A New Approach to Theraphy In ALS."
I appreciate your continuation of the Blazeman Foundation Post-Doctoral Fellowship through 2012, and this funding of Dr. Siddique's project will provide excellent resources for his continuing work in ALS. Just this past winter, Dr. Siddique's discovery of a FUS/TLS gene mutations in ALS families has shown new molecular defects that cause damage to motor neurons. We are hopeful that in this new endeavor, Dr. Siddique and his team will develop therapies to postpone the disease's onset and slow its progression.
Again, I thank you for the Foundation's generous commitment to this research, and I offer my best wishes to you in this new year.
President and Professor
Again, to all...this is your letter...your commitment to "the -blazeman's" desire to find a treatment and a cure...is the expression of your individual commitment to fight Jon's War...to be an echo and a voice for all the PALS(people with ALS)...as Jon said in the very begining, "Decision must be instant, Commitment must be Total"...and that in the War On ALS, any and all success will be..."earned and never given".
God bless and thank you.
In Freedom (from ALS) and with appreciation,
blazemom and blazedad...jon's mom and dad.